Transitioning CSID Management to a Young Adult

Transition is the process of preparing your child with CSID for independence in the real world. Your child with CSID should have the chance to assume increasingly greater degrees of responsibility and independence as they age. Teaching a teen self-management in regards to CSID is crucial. Some of the self-care training can start during the early teenage years in preparation for the later teen years when they must start to assume more adult-like responsibilities.


One aspect of transition is the process of a child moving from pediatric healthcare services to adult healthcare services. A well-timed transition from pediatric- to adult-oriented healthcare services is specific to each person and ideally occurs between the ages of 18 and 21 years. Adult healthcare services are different from pediatric services. One of the biggest changes is the amount of input and responsibility a patient has in regards to his/her own care. As an adult, there are expectations for the patient to be more involved in making medical decisions.


In order to transition effectively, teens should start playing a bigger role in managing medical care. Some tips for teens to get started with this transitional process are:


  • Learn the important information about his/her condition.
  • Keep track of his/her own medical appointments.
  • Encourage him/her to ask questions at medical appointments.
  • Encourage him/her to take notes at medical appointments.
  • Modify his/her own diet and follow diet restrictions regularly.
  • Administer his/her own medication and reorder as needed.
  • Know his/her own medical information, such as CSID diagnosis and drug allergies.


When the time comes to transition from a pediatric to an adult physician, some careful pre-planning and research can make this transition less stressful. Most adult gastroenterologists do not have experience with CSID. Researching physicians well ahead of the transition time will pay off in the long run. You may want to consider providing the physician’s office with a medical article or short summary on CSID to be placed in your initial file for quick reference by staff.


Searching for an adult gastroenterologist and primary care physician whom you feel comfortable with may take time. Dealing with a chronic disorder requires a strong physician-patient relationship, so it is worth looking and waiting for the right physician you can work with effectively. It is important that you can develop mutual trust and a partnership in dealing with this disorder. Even with the best planning, there may be unexpected problems that arise in the transition process. This is normal, and parents/caregivers should be available to assist teens in the transition process as needed.