For adults dealing with CSID, the depression and anxiety that may arise due to the psychological impact of facing a lifelong, incurable disorder should not be underestimated. If you feel you are having difficulty coping, get help early because these feelings should not be ignored. Your family physician may be able to refer you to an appropriate specialist who understands the psychological impact of chronic disorders. Although many psychologists/counselors can help you, finding one that specializes in chronic disorders may take some time and effort.
Since CSID is a genetic or hereditary disorder, adult CSID patients may want to seek a consultation with a medical geneticist or genetic counselor at some point to learn more about what CSID could mean in regards to family planning.