I’ve Been Diagnosed/My Child Has Been Diagnosed with CSID. Now What?

Being diagnosed with CSID/genetic sucrase deficiency may present an immediate, overwhelming feeling, but it is important to understand that CSID is not a fatal disorder. The symptoms of CSID often have a substantial impact on both the patients’ and caregivers’ lives, but with consistent compliance to dietary management and proper treatment, life can return to a sense of normalcy.


Patients with CSID typically require a specialized diet and/or Sucraid® (sacrosidase) Oral Solution. Working with a gastroenterologist and a registered dietitian (RD) will assist the patient and caregiver in understanding the importance of dietary management, and ensure that the patient receives proper nutrition within the constraints of his/her restricted diet.